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The other side of the coin: Harm due to the non-use of health-related data

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Original languageEnglish
Pages (from-to)43-51
Number of pages9
JournalInternational journal of medical informatics
Early online date24 Sep 2016
StatePublished - Jan 2017


This article uses an international case study approach to explore why data non-use is difficult to ascertain, the sources and types of health-related data non-use, its implications for citizens and society and some of the reasons it occurs. It does this by focussing on issues with clinical care records, research data and governance frameworks and associated examples of non-use.

    Research areas

  • data, health research, privacy, harm, governance

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